Last Tuesday 13 January I had my 16th and final tysabri infusion. – a Disease Modifying Drug (DMD) YAY!!
Every 4 weeks since starting this drug in Nov 2013 I would go for a couple of hours and have this drug put in through IV. It was actually quite relaxing not being able to move, forced to sit down, being kid free and I even got lunch somedays or at least some yummy snacks like ice-cream!
For my final treatment I brought my family in to see how it all happens and meet the lovely staff at the RAH who couldnt have been more welcoming and happy to give my babies some ice-cream! Poor daddy missed out tho hehe. The staff all want me to come back and report how I am after I return. With any luck I will be going back to show them I am free of MS and doing as well as all the other warriors who have returned and are even seeing some improvements!
Now I have a treatment free 3 month washout period to make sure its all out of my system. This brings risks of a relapse, but it is a risk I am willing to take and 3 months will fly by. After my HSCT I will (fingers crossed) no longer need to have any further DMD’s as my MS will be stopped, halted, no longer, a thing of the past!
I am so pleased all went well on this drug and none of the side affects affected me. I didn’t have any more relapses on tysabri and felt it was the best thing for me at the time… BUT only because I didn’t know about HSCT!! I am so very relieved to be off it as this means its getting close to leaping for my better life now YAY!!!

