Lauren's Leap for a Better Life

Please support and follow Lauren in her leap for a better life withOUT Multiple Sclerosis.

Isolation Begins, Day +2 – Friday 8 May 2015

2 Comments

So today started pretty early, I think they did my blood pressure about 6ish which was a bit high still but I lounged around in bed for a while, had my bloods taken at 8am then got up and had my breaky. There is no rush to do anything and I haven’t heard from Joe yet. About 10 he calls and he is better today, thank goodness.

Then Dr F comes in with the news we are shutting my doors today and I am entering the isolation phase.

Hemoglobin = 112 (120-150)
Leukocytes = 0.27 (1-4mil)
Platelets = 65 (100-400)

He is impressed that my leukocytes have dropped so well and are a 4th of what they were yesterday! I am equally stoked as this means the MS is getting killed off!!! I think he wants this to get to .05 which is practically 0! (Im confused though if its 0.50, Anyway I will find out tomorrow)

So I have the run down about how isolation will work, what you need to do etc from Dr F and then Anastasia. I got confused here too, she told me I could keep my clean clothes and underwear etc, phone, computer so I put all the dirty stuff out and they still wanted to take my suitcases lol. Silly me…. I knew they took most things away. All good I just needed to put my clean stuff in the little cabinet next to the bed.

Joe came in and was allowed in through the door up till 3pm but we didnt risk it, just in case it was a bug. From now on there are two doors into my room. There is a bathroom and storage/fridge/microwave room first then another set of double glazed doors into the bed area. I must have the door to my bed area closed at all times and same on the otherside for the nurses etc. They will all be masked, hair netted, and only come in for the shortest time required. Food etc is still brought in to me and I have a steralising soultion that I must rinse all my plates etc in. When its time to clean my room, I need to go in the shower. So they are in one part and you are in the other. After the shower you have this solution that you must wipe over you. One for your body and one for your sensitive areas. Im sure its not actual vodka, but other warriors before me have called this a vodka sponge bath, so we will stick with that. Then there is no teeth brushing, an antiseptic mouth wash is given instead.

There was an infusion and an injection at 3.00pm and a changing of my dressing for the picc line again. I have developed a bit of an irritation from the dressing where the skin has rubbed away, but I am tough and it only hurts when they spray the alcohol spray on it lol. Time to say goodbye to Joe and time for my shower and for Iso to begin.

image

Today is Nonno’s Birthday, and it was great to skype while the family was there having dinner and lovely of them to post a video of cake so we didn’t feel like we missed out! Thank you.

Joseph went shopping this arvo and I must say I was apprehensive about what he might buy, I am a bit of a control freak for those who dont know me that well. Well when he got back to the hotel and showed me what he got I was quite impressed. Just a jacket each for the kids and a dress for B and top for Dom but he did well. I was relieved hehe.

image

image

I spent the arvo watching all the videos on the crows app. All the Hall of fame dinner speeches and catching up on videos I would never have watched otherwise. I found myself hanging for dinner. I am really craving protein at the moment and when the mid morning snack comes at 12. I find myself hanging for that yummy piece of roast beef that comes with 2 boiled apples. I really wanted meat for dinner and it was some varient of it and it also came with a side of baby food… It said mashed beef so reluctantly I opened it and tried some. I am not going to think about what parts of the beef it might have been, but it was ok on my piece of bread. Just like a dip! I then decided at 11 that I needed to have some two minute noodles as I was still hungry and I went to sleep.

2 thoughts on “Isolation Begins, Day +2 – Friday 8 May 2015

  1. William Carson's avatar

    Hello from all of us in Newcastle,

    Well Lauren it sounds like you will have a lot to keep you busy making sure everyone does the right thing while you are in Isolation. Vodka sponge bath sound interesting can you imagine trying to explain that to the booze bus on a Friday night. If I am reading this right Lauren your Leukocytes have to drop another 0.22 which will put them at 0.05 and with the rate they are dropping it shouldn’t be long . Glad to hear Joseph is on the mend nothing worse than being unwell when you are away from home and you could do with out the worry. When I spoke to your mum last all seemed pretty settled in Adelaide. Will catch up with her over the next day or too and get all the news from Melbourne Cool day here in Bolton Point but the sun is shining – winter on the way. Sens a message if you fancy skipping. lots of love Auntie Sheelagh and co xoxo

    >

  2. lolly82's avatar

    Thanks for the message, yeah all good here. He wants them under .50 so i am definitely there and today they were .16 so well and truely under the limit. Hope it doesn’t cool down too fast and you stayed dry last weekend. Enjoy your weekend. Love to you all xx

Leave a comment