Early morning bathroom stops on the weekends work well for the time difference between here and home. I woke up about 2.30am and was able to skype the kids. As it turned out they were just doing the change over at Nonna’s so I got to spend the morning with both mums and my babies. They exhanged pressies and the kids showed me the succulent Bianca had painted the pot at school and her cards she had made etc. It was nearly like being there, well, ok not quite but I was satisfied. I could have got all sad about today and missing out, but to be brutally honest I think I’m the lucky and blessed one with the best present ever. (And I get to rest all day long!) Getting rid of this MS, this is the best thing I could ask for and to each and everyone of you who helped me get here – THANK YOU FOR MY PRESENT!

Sorry to Joan and Mum who didn’t get a restful day looking after my kids, but I hope it was enjoyable for your both anyway. Love you both!

Of course I went back to sleep and was woken for obs, an infusion and bloods at 6.45am. Surprise surprise, my blood pressure was a high, but still not a concern. Then I went back to sleep till breaky.

Dr Fedorenko brings my results in and does his checks. He tells me they have done a full blood chemistry today and checked my kidney and liver functions etc and they are all normal. He is happy with me. He says my leukocytes will probably keep dropping til about day +6 or so. And he will keep monitoring my platelets etc.

Hemoglobin = 108 (120-150)
Leukocytes = 0.15 (close to 0)
Platelets =  42 (above 20)

I found myself watching the port match and then decided that perhaps last weeks wonderland might be a better choice to kill some time, looks like it ended up being a good game in the end. But argh ten play you will be the death of me!! PS I got my 2 pieces of beef again today, makes me happy again. Just as it starts running nicely, the nurse comes in to do my room and I have to have a shower. 😐 and I’m in trouble cause I hadn’t washed my plate yet even though I had literally just finished it!

After finally finishing wonderland I am having my next infusion and shot and obs, blood pressure is up so they call Dr F and he is happy as he said its me and I explained I had just got out the shower etc. I was skyping the kids for bed just as Joe gets here with my milk and plastic cheese. They had just been through the shower and so had I and Dom was very instistant that wanted to see my shower so they had a little tour lol. Then, a cleaner came in a kicked Joe out! What are you doing in here? Get out its sterile, you can not come in! Woooo! Hold on a minute… when did that change… he was not in with me, but on the otherside of the glass.  So he finished with the kids outside the room and was giving me the computer and a little mother’s day gift mum had sent back when he got in trouble again. Poor Joe, Dr Fedorenko, Anastasia, and all the other nurses have said its ok and I explained this to the cleaner, but she said NO and gave me a talking to too! Then she cleaned the room he was in again! This same cleaner made me wear the hospital clothes today and not mine… she obviously has my interest at heart but man she is bossy today! This is the outfit they give you to wear. A bit ninja like hehe.

Well that put a damper on my day, nothing we could do though, so Joe went down to level 2 and caught up with the other aussies who are in day 3 of chemo there for a little bit and then went shopping at the big metropolis shopping centre about 1 hour away. Still normal price shops and nothing worth buying he said but he said it is 3 times the size of Westfield Marion and he had to use multiple metro lines to get there. I decided that pehaps I would hook up the foxtel go on the PC and watched 2 movies, walk of shame and the Fault within our stars, this helped pass the time and I can watch all the romances and comedy’s I like without pissing off Joe hehe. Lunch today was a soup and pasta with beef chucks and then dinner was Fish and mash potato. I definitely have my appetite back as I even ate the fish!!! And the cleaner was in, as soon as I had finished and was washing my plates happily for me. I dont know if she was making up or what? I then crashed it, I didn’t even get to stay awake for my nightly check in with Lucy (sorry hun). Now its 11.30pm and I am just finishing this and will hopefully go to bed for the night!

Thank you for sending the present mum, its hanging on my beside table where I can see it… I love that it says i love you mum when you squeeze its tummy!