Besides getting up for the loo a few times I have been sleeping reasonably well here so far and ending up with a good amount of sleep overall. Last night however was a different story. After an hour and a half I woke about midnight drenched so changed my pjs, skyped the kids and was unable to get back to sleep til 2.30ish and then I was up again at 4 and unable turn my brain off! I managed another hour between 6 and 7 and was again awake. I was thinking about what type of natural products I would use after this treatment for a healthy new life, what kind of carpet we would put in our bedroom this time, what presents could I buy Tyson, Willis, my dad and Tarryn for their birthdays. What bills are due this week, how long will it take to lose all my hair and is this actually engraftment? Argh all good though I didn’t feel like I’d had no sleep so I was ok. I layed in bed waiting for my obs, bloods and infusion. At 7 they did my obs and I told them I had a headache so I had some painkillers, then about 8.30 finally my infusion and bloods. Then it was breaky and I was just looking up all the things I was thinking about in the night.

Dr Fedorenko came in about 10 with my results for today. I was very surprised they didnt take long today given they were taken late. If my levels are still up tomorrow then I should start engraftment.

Hemoglobin = 113 again
Leukocytes = 2.5
Platelets = 180

He gives me the great news that I can have my doors open now. I only had 6 days of iso and today is the 7th and Im free. I actually didnt mind the time to let my body rest and relax and it went super fast. I am able to go out on level 3 but I must mask up and Joe can come in my actual room with all his stuff on still. Dr F says if and when my leukocytes are above 3mil then perhaps tomorrow I will be able to go and get fresh air for a little bit. So we will see what tomorrow brings. This sign means masks only, I love it!

We are having an issue with getting our ensuite finished as before we left we could get the tiles and then they had a stock take sale and now they are out of stock! Argh FFS! So its been put on hold again. Not to much we can do from here so the parents have been trying to sort it all out for us. Thank you so very very much!!!

I spent ages on skype to the kids while they had dinner and got ready for bed. It was so nice to “eat” with them. 1 more week and we will be home. Yay!! Joe came and we went and sat in the lounge and socialised with Lucy and Dan, Katie and her dad, Kristoffer, Sonia and James til lunch came. It was sooo good to have conversations with these beautiful people. When I got back the nurse was waiting for me to have last neutropenia shot and infusion.

We shaved my hair off as it was really coming out in chunks, really thinning out in some patches and I didn’t want it all over my pillow again and I felt it was time. Man do I look like my brothers now!!! It is very liberating. Now to see how long it takes for it all to actually come out! Just for some TMI… underarms and bikini have movement but legs do not yet!!

After my shower I went out sat on the lounge again for the beautiful Rosemary and Monica’s new life celebration. And boy oh boy was it a gorgeous party. Everyone was there…. so many people and so many Pizzas and vegemite on bread. Everyone was so happy and enjoying themselves and it was just awesome. Congratulations ladies and welcome to your new life without MS!!

Then it was time for most people to hit the hay as it was after 7pm. Joe went back to the hotel and I was researching if these tiles were anywhere else and of course I found them in Brisbane so we will have to see if we can ship quick or if perhaps we go down a different path so I was having fun looking at all the options online. (A bit of house rules reno hit me) I then decided to watch some footy show highlights and I think Lucy might have been able to hear me laughing at old man crawf! Friggen hilarious!! Well till tomorrow folks…