Hello 1am… I was awake and skyped into the kids, and then I noticed the bone pain… OMG my legs, I could feel them! From my hips through to every bone in the soles of my feet were in agony. I got up to go to the toilet and my walking was shite and it really hurt to move. I couldn’t put weight on my feet and needed to use what ever I could hold on to to walk. I haven’t needed to call the nurse in the night yet… (they sleep on the lounge out there) but I needed something for the pain. They gave me something and then about 3 it kicked in and I went back to sleep. But at 4 am I was awake and it was worse. I needed to get some stronger meds. I got them and wow they worked nearly instantly and I was able to get some more sleep.

I was awake at 6 for the crows, no need for the alarm. I was still in pain but not anywhere near as bad in the night. I enjoyed watching the game and was very pleased we won. I know Nick was way worse of than Brodie, but I was over poor poor Nick. Brodie was injured too and hope Jenschy is not a serious acl or something. Well done boys.

After breaky I was having a lie down and Dr Fedorenko came in we had a good discussion about the bone pain, I didnt have to tell him as he already knew. He explains that 30% of people experience bone pain on engraftment. This is normal and to be expected. He said hopefully it will only last a few days but to make sure I have some pain killers and let them know when I have any problems or the pain etc. I can have the meds every 6 hours. He also said to make sure I get out for a walk again but it is another crappy wet day! They are not taking my bloods til Monday as the Rutiximab will alter it again.

What is engraftment? Engraftment is when the stemcells make their way back into your bone marrow to start making my new immune system with no memory of MS. Yay… go you stemmies! So bone pain = A short term pain for long term gain!

At 11.30 I figured I better get up and and get moving and see whats going on out there after my snack. Everyone else is now in Isolation so I decided I would open my bags that were returned yesterday and put my washing away now it had been drying all over the end of my bed and the chairs for two days. I am missing a pair of my leggings, couldn’t be my cheap target pair, has to be my expensive intimo ones. I have asked the lovely Anastasia and she will hunt them for me. So now I have essentially packed my bags to come home, my food suitcase is now our declare bag with our souvenirs and my bag is packed. Its getting close now, I can see the finishing line.

Todays treatment was just some steroids and that was all. I had this infusion over lunch and then I made a jelly. At 3pm I made it into the shower and then Joe arrived. He had also gone back to sleep after the footy and then went to the market to pick up the final bits of the shopping. He picked me up this Faberge egg and when I saw these before it just resonated so much I had to have one…. NEW LIFE IN MOSCOW!!!  He is getting good at bartering now too. Thanks baby! Thanks Sonia for letting me use your photos of the markets too.

This weekend David and Emily are having our kidlets. They dont have any kids of their own yet, so I hope it doesn’t put them off too much. Im sure it wont really because I know how much they love them and they know them well and they are perfect godparents to Dom. Today they went to the park for a picnic lunch, strawberry picking at mount compass, baked a cake (was awesome to watch them decorate the top smushing the strawberries in), watched a movie, had a bath and they were fast asleep at a good time… you guys did that too well!!! Thanks again xx

My internet ran out, I had used 30 gb’s already eek!! Poor Joe, he went out in the rain to get me a few extra gig to get through the last couple of days. I was going to go for a walk then too but it was too wet! I did manage to stand under the veranda and get some fresh air but then I came back in and turned on the laptop. I realised a few people had been clicking on the blog post page and Im sorry I hadnt updated that since I swapped laptops with Joe a couple of weeks back… I have put the links up now. Sorry!!

Joe, Sonia, Dan and John have gone out to dinner to a Georgian place called Ketsu tonight and I made a currie chicken packet mix…. well the curry was not a good idea as now I have heartburn and am sucking on fruit tingles as I write this. I have just downloaded all of my 4169 photo’s and videos off my mobile so I have some room. Took me ages and I hope it all worked ok and I got them all. Now I have 11 gb available… should have done it earlier oops!!

PS I haven’t had much more pain since about 1pm so here’s hoping it doesnt come back in the night! Dr F has been here since 7 am and will work through to 11am tomorrow. He just came in to check all is ok and say goodnight. What a man!