Lauren's Leap for a Better Life

Please support and follow Lauren in her leap for a better life withOUT Multiple Sclerosis.

No Pain, No Power, Day +11 – Sunday 17th May

6 Comments

A nice solid 5 and a half hours sleep last night with a 5am wake up. I was hungry and got myself a nutrition drink, watched the new videos on the crows app, thought I saw Todd on the crows show episode and got excited but he says it wasnt him, caught up on fb and then went back to sleep till breaky.

Dr Fedorenko came in at 7, he had been on call all night with his shift starting at 7am yesterday and him finishing at 11am today. Lucky for him he only has to do this every so often. He explained today’s procedures… I am having the regular preventative medications and then a jab in the butt for pain as the steroids are not as strong today and then a little later a smaller dose of steroids,

I called in on the kids who were just about to go back home from Dave and Emily’s. They had a nice day drawing, playing at the park and with Rocky and Dom gave Em a little taste of what a day of strawberry eating can do to his tummy. Sorry hun! I am not sure who was more tired out Bianca and Dominic or David and Emily! Thanks guys xx

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Then the power went out… they were doing maintenance and had turned half the power off. Of course my mobile got down to 10% the computer was still ok, but I was using my mobile as a hotspot, and my room got warm. I decided to then go and sit out and read a magazine on the lounge. I found myself sorting the coffee table items – magazines, into english and russian and then in name etc, then books and dvd’s etc in size order. I must have bored!! Then Joe and Dan come in and as Joe was heading into the Kremlin he had bought the camera in but was needing to charge the battery and I had the charger here but there was no power. Then we realised the TV had power out in the lounge so we were able to charge my phone and the battery etc. I guess he always finds a way of making things work!!

I went back into my room for morning snack and I got my 2 pieces of beef again!! Yay! Then we skyped into say hello to the kids and my mum but it was more like goodnight… They were buggered, they were both wornout and so ready for bed! Then we turned on the power game and looked like there was no power in Brisbane either! Sorry couldn’t resist saying something! I had a quick 3 minute conversation with BJ but the viber connection with not good reception was so hard. I managed to work out it is nicer for him now, out of training, that I will be able to see him on the June long weekend and everything here is good! We will catch up properly when I’m back buddy, sorry! I was hooked up to a quick infusion of today’s steroids and that’s it now for today.

Then Joe, Dan and John left to go to the Kremlin and I went for a walk with them to the gates. It is nice to get some fresh air. Once back in, I sat out talking with Sonia till lunch came. Then we both were trying to muster up the energy to move! I let my lunch sit there for a while then finally got up to eat it and it was luke warm… it was soup so it was warm enough but even so I went to put it in the microwave but of course no power! Then halfway through my cold main the power came back – of course I should have been more lazy for 5 more mins and I would have been able to have a hot lunch!!

I was very happy that finally there is tonights episode of house rules to watch… Its been a long 3 days without it lol. I Only got through half of it before I went into the shower now I had lights as I didn’t want to be late for dinner!

I was heading out!! Kristoffer and I were allowed to go somewhere for dinner… We decided that the hotel restaurant “Gusi Lebedi” was probably the safest place to go as its not crowded and we know what the food is like. It was really super to have dinner with everyone, Joe, Sonia, Krisoffer, John and Jamie, even Manny and Stephanie dropped in to day hi! I need to be really super careful with my baby immune system. So we masked up and got a taxi back to the hotel. Straight into the restaurant, wiped down the menus, and didn’t touch or eat anything were are not meant too. I need to make sure everything I eat is well cooked, or not raw salads etc that I don’t know if its washed etc or anything that can harbor bacteria. Just like a pregnancy diet. I had a veal schnitzel minus the lettuce and with roasted potatoes and grilled veg. It was delicious! I then had warm chocolate cake for dessert… I had been craving desert and cake so this was divine! It meant that Kristoffer and I were pushing it to get back in through the gates before 9, but we made it… JUST!

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Once settled back in, I watched the rest of house rules and noticed my leg hairs are thinning finally… Dr F told me today I might not lose them so I was very happy to see this hehe! I have had no complaints at all today, my walking is still more unsteady than before the treatment, but thats how my body reacts when I am under stress, or tired etc and my body has been through a lot so it’s to be expected I guess, but no more pain today! Happy wedding anniversary to my parents for today… sorry you had work and my kids!

6 thoughts on “No Pain, No Power, Day +11 – Sunday 17th May

  1. Cathy Nicolopoulos's avatar

    Looking good Lauren !

  2. Roger's avatar

    Great reading Lauren, sounds like you are both coping ok. Thank heavens for technology to be able to stay in touch with your kids and family.
    Roger and Ann-Marie

  3. Graham Dunn's avatar

    I have been reading your blog Lauren & I feel I have been with you every step of the way (well as much as one can being so far away) I am very impressed with the way that you have handled it all. And, I hope that your pain levels will be manageable from now on. Good Luck with the rest of your journey. Not long now. Take care both of you and safe trip back.

    Cheers Graham
    PS Had a chat with Marlene at work last week.

  4. lolly82's avatar

    Thanks Roger and Ann-Marie yes we are great and so very true. X

  5. lolly82's avatar

    Hi Graham, thank you for your kind words, I am glad you are able to share in the journey. Thanks Lauren x

  6. William Carson's avatar

    Good morning Lauren, Spoke with your mum yesterday morning very briefly she tells me you will be home Thursday not many more sleeps! It looks like you will be coming home with hairy legs. Will look for you on Skype tonight after work love Auntie Sheelagh

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