Its been 2 weeks since I last posted an update and I don’t feel like I have anything too exciting to share. I am now 8 weeks post transplant so 2 months has passed already! The time is going quickly and its been a busy but restful couple of weeks.

We got both sets of parents tickets to TOTEM by cirque du soleil for looking after our kids whilst we were in russia and on that sunday we went to dinner with them after even though I had a massive headache as my cold turned into a sinus infection. This was my first meal out somewhere since coming home and I only managed to have some chips as I really wasnt feeling good. At least I know I was safe lol.

Monday I called my haemotologist to check if there was anything he specifically wanted me to do for this terrible sinus infection, but he just got me to go to the GP for a script of antibiotics. So the day before Joe left for his first work stint we went to the drop in clinic as I thought I wanted to change GP but perhaps mine isn’t so bad after all…. this one literally didn’t do a thing except write the script and Joe ended up storming out after he asked if he was going to even check my temperature or make sure I did infact have a sinus infection! I guess he trusted I knew what I was talking about. You would think he would have had a duty of care to make sure what he was prescribing was for what I had.

Anyways I spent the next few days resting up as the kids slept at Joan and Michael’s and then Thursday we got some scary news… whooping cough was going around Bianca’s school. So I pulled her out and started her holidays early! It’s going to be a long three weeks but with what ended up being 12 confirmed cases it was a risk I was not willing to take. Whooping cough can be very serious and for someone with a low immune system it would be even more so. I called my haemotologist and he also got me to get a preventative course of antibiotics incase Bianca had picked it up.

Saturday night my baby girl performed in her first dance comps and I couldn’t have been more proud. She did a fantastic job and whilst I had no idea what to expect in terms of competition or how she would perform, I was shaking and in shock when she WON and thank you to her little support crew. It has been a long time since I was in the dancing scene and I can see this is just the beginning for her.

Just as I finished my antibiotics, my sinus infection was starting to disappear thankfully as this had really worn me out and made my existing MS symptoms quite strong and obvious this last week or so. I really felt like I couldn’t achieve to much in terms of house work or playing and with Joe away both sets of parents were a big help especially with Bianca home. I still managed to be or go where I needed but took it easy at home.

Wednesday I saw my haemotologist again and he is happy with how I am going and has given me permission to start going out a bit more like to the footy etc but be sensible about it. He has also recommended that I continue to stay away from the daycare drop off and pickups till after 3 months post. I will now see him in two months time and only have my bloods done then too, I am not 100% comfortable with this as I think I should see him at a 1 month interval as then I will be 3 months post and thats when I should be even better and can possibly look at introducing more foods etc so I will look to change this when I go for my pentamidine. My bloods were good still….
Hemoglobin 111
Leukocytes 4.8 (down but i had an infection and they will keep fluctuating) with good neutrophils
Platelets 325.

I am hoping that when this sinus goes 100% and I get some energy back I might be able to start some rehab/exercise. Need to do something about this chemo gut! In the meantime Bianca and I will be doing stretches daily as she has tight little hamstrings and I will start with low intensity even though I don’t have much feeling in my right leg and want to feel the burn so I have to over stretch to feel it!