Wow another two weeks has passed already, life goes on and I am doing well.
Thursday, Bianca Joe and I headed into town to purchase a wig as I was getting frustrated with my scarves and hats etc moving when my ears/cheeks wiggles when I talked or laughed or not having a matching one for each outfit. Was an interesting and fun experience and I will never forget putting it on to show Dominic – he just stared at me for a good 20 seconds and wasn’t sure what had happened. I then showed him it was a wig and he said to take it off. He also asked why I had put lips on when I wore makeup for the first time since going to russia that night too lol. I didn’t think I needed a wig and it was definitely more for comfort than vanity, but I love it and will continue to love it when I dont have time to style, even when my hair has grown back!
The week before Joe left we were soo busy but it was so much fun and I finally got to catch up with both our extended families and some friends and have some time together too. I felt like life was getting back to normal a little bit as I did head out for most of it and enjoyed my new life. I wasn’t too tired at the time either and I have definitely noticed more energy.
I have attended 2 football matches, the showdown with Joe and the gold coast game with my babies. Both games I found walking in and out soo much easier and even commented to Joe and David that I don’t think I have ever walked so quick and I felt fine. I normally would have to ask people to slow down. Even managing the stairs was soo much easier without my ms leg pain. Yahooo!
We were at our friends place on monday and when leaving, I loaded the kids in the car and realised I had Joe’s sunnies and he was staying behind so was still out in their shed… not wanting to leave the kids too long I sort of ran them back to him. I found jogging slowly possible, my right leg was still weak and it was not smooth but it was definitely safer and easier than pre hsct. I WAS happy but didn’t really think it was propper running and no one saw so I couldn’t get an opinion or comment. I also still had my cold so my body wasn’t at its best.
After dropping Joe at the airport I did head into target for the toy sale… this was my first time shopping in a store apart from a small supermarket. I loved it so much that I did my kids layby, went home for breaky, looked at my reciept and saw a bargain and went back to finish the rest of my family and friends children too.
I popped into work and visited my beautiful collegues and also went to the hockey club for the first time too. I loved catching up with you and I have missed you all
I had an appointment with my haemotologist as I was getting close to 3 months and he said I can go back to normal at 3 months and I wanted clarification on what that exactly meant. He told me I can eat normally, go into childcare and Bianca’s classroom, go to the kids swimming lessons and to GET OUT OF MY BUBBLE! I didn’t think I was in a bubble a such, but just being cautious and using common sense and a lot of hand sanitiser! He told me that my blood levels now are at a safe level and if I was to contract something it wouldn’t affect me any differently that it would a “normal” person 😕 Whilst I agree with some of what he said re food etc, I don’t know if I feel like I can relax if people around me were seriously sick etc.
Well with school being back and into week 2 already the time has flown and Dominic and I are having a great time together and I am able to play with him and am not too exhausted to get up and down after him. In fact on Monday I even chased him down the hallway and realised I ran without thinking about it! So I put on my sneakers and we went to the park after school pick up. Then I told Bianca to watch this and on ready set go, we all ran, all the way across the oval and back… I CAN RUN! not a jog, not stumbling whilst trying to move fast, not rolling my ankles… I had the energy and I had balance and strength and I could do it! Even better than last monday. The kids were sooo excited and so was I. Bianca even drew this picture of me running, and a dodgy video will be uploaded on the facebook page.
Since my last attack in sept 2013, the only time I ran was last august when I played the last 20 minutes of a hockey game (as they were short after people left early). I rolled my ankle 3 times in the short distance I did attempt to run and I was not safe. I played a high striker and only helped make up the numbers as I realised my hockey days were definitely over both with running and my skills. But now after seeing the improvements of hsct this week I might be able to make a come back, but running is only the start of what is needed so we will see next year.
So to wrap up I will tell you all the wonderful things I am noticing since my hsct now I am 12 weeks and nearly 3 months post! I was thinking some of these things could have been steriods but now they are becoming an everyday occurrence or people are noticing for me…
✔ I can run
✔ I can walk faster
✔ My walking looks better
✔ I can manage stairs safer and without assistance or leg pain
✔ I have energy
✔ I dont look tired or run down and people are commenting on this all the time
✔ I can use my right leg to stand up from the floor
✔ I can balance whilst squatting down
✔ I can have a hot shower without being wipped out
✔ My writing has improved
✔ I can lift the kids easier
✔ My jerkiness is gone from my right arm and hand.
✔ My dexterity is better
So I think I can finally say I can see all these changes and improvements and that the treatment has been all worthwhile. Fingers crossed it has halted the progression too, I am sooooo blessed!
THANK YOU ALL FOR GETTING ME THERE X

